Rarely Heard: All Episodes
S1, E4. Lyme disease: Stigma, identity and finding joy
Morven-May talks about being diagnosed with Lyme Disease as a teenager and how it continues to shape her identity and outlook a decade later.
S1, E3. Spina Bifida: Fatherhood, mental health, and the importance of inclusion
Dan White’s world changed forever when his daughter Emily was born. Dan talks candidly about their lives with multiple diagnoses, their early struggles, and how campaigning and advocating for inclusion for all has become central to their lives.
S1, E2. Hunter Syndrome: Motherhood, grief and loss
Geraldine Renton’s world changed forever in 2020, when her son Ethan passed away due to Hunter Syndrome.
S1, E1. Duchenne Muscular Dystrophy: Motherhood, acceptance and finding happiness
Shelley Simmonds’s life was forever changed by the birth of her second child, Fraser, who was diagnosed with a rare, genetic, disabling and progressive life-limiting condition called Duchenne muscular dystrophy in February 2014.