Season 2: Talking in tandem
We are doing things a little differently this time around.
Join us every fortnight as we release two episodes, one featuring a person living with a rare disease and the other someone working professionally in the disease area. Talking in tandem, is a chance for you to hear a wider range of stories and perspectives from across the rare community.
You can listen now on Spotify, Apple, Google, Amazon, Overcast and Stitcher.
S1, E3. Spina Bifida: Fatherhood, mental health, and the importance of inclusion
Dan White’s world changed forever when his daughter Emily was born. Dan talks candidly about their lives with multiple diagnoses, their early struggles, and how campaigning and advocating for inclusion for all has become central to their lives.
S1, E2. Hunter Syndrome: Motherhood, grief and loss
Geraldine Renton’s world changed forever in 2020, when her son Ethan passed away due to Hunter Syndrome.
S1, E1. Duchenne Muscular Dystrophy: Motherhood, acceptance and finding happiness
Shelley Simmonds’s life was forever changed by the birth of her second child, Fraser, who was diagnosed with a rare, genetic, disabling and progressive life-limiting condition called Duchenne muscular dystrophy in February 2014.