Season 2: Talking in tandem
We are doing things a little differently this time around.
Join us every fortnight as we release two episodes, one featuring a person living with a rare disease and the other someone working professionally in the disease area. Talking in tandem, is a chance for you to hear a wider range of stories and perspectives from across the rare community.
You can listen now on Spotify, Apple, Google, Amazon, Overcast and Stitcher.
S1, E1. Duchenne Muscular Dystrophy: Motherhood, acceptance and finding happiness
Shelley Simmonds’s life was forever changed by the birth of her second child, Fraser, who was diagnosed with a rare, genetic, disabling and progressive life-limiting condition called Duchenne muscular dystrophy in February 2014.