S2, E10. Neurofibromatosis Type 1: There is no health without mental health

Stephanie is an accredited psychotherapist working with Rareminds and has been a specialist cancer counsellor in the NHS for over 7 years.

In addition to her clinical practice, Stephanie conducts research and provides training and consultancy on the experience of living with rare and chronic conditions. Informed by both a lived and professional experience, she is passionate about raising awareness and improving mental health services for the rare disease community.

Stephanie speaks on how caring about mental health is everyone’s responsibility, the importance of support and interventions in the rare community and the simple power of asking ‘so how are you?’

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S2, E11. Alkaptonuria: One man’s rare disease journey from Ukraine to the UK

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S2, E9. Neurofibromatosis Type 1: Benign does not mean fine