S1, E6. Life as a young carer: identity, perceptions and looking after yourself

Connor talks about what it's like to be a young carer for his partner Simon who is the owner of multiple rare and chronic diseases including hypermobile Ehlers-Danlos Syndrome and Idiopathic intracranial hypertension. 


He talks openly about what it's like to be both a partner and a carer and how this has impacted his identity and self perception. To Connor, caring is a positive thing and he believes that the perception of caring and disability can be changed with increased awareness and education of what it means to be chronically ill.  He speaks about how difficult it can be to reach out and find support for your mental health, especially as a man, but how important building connections is within the rare community.

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S1, E7. West Syndrome: Fatherhood, advocacy and men’s mental health

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S1, E5. PCDH19 Epilepsy: Motherhood and the journey towards finding hope and healing