S3, E1. The importance of specialist services for patients and families.

Welcome to Season 3 of Rarely Heard.

In today’s episode, we’re diving into the world of Specialist Services - clinics that provide expert, coordinated care for people and families living with rare or complex conditions. These services play a vital role, not only for those directly affected but also for the wider healthcare system.

We’ll be exploring the innovations, challenges, and collaboration models that shape these services, and the impact they have on patients, families, and healthcare as a whole.

This episode features a diverse group of voices, from patient advocates and researchers to clinicians, all working together to ensure that everyone affected receives the best possible care.


Please listen below!

Coming soon: episode transcript
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S2, E12. Alkaptonuria: The value of working closely to empower patients