S2, E8. Primary Ciliary Dyskinesia: The power of partnerships in PCD and across the rare community

Amanda is a PCD & Children's Respiratory Nurse in Southampton. She is the nursing lead for the Southampton PCD Diagnostic Service (for adults and children) as well as the Southampton PCD Children's Management Service.

She talks passionately about her role in diagnostics, supporting the patient and family through any and all challenges that come their way, the importance of a well-managed transition to adult care and the power of building partnerships in PCD and across the whole rare community.