S2, E1. Poland Syndrome: Bodies and boobs from adolescence to advocacy

Rebecca Butcher was born with a rare condition called Poland Syndrome that caused one of her chest muscles to be deformed and therefore means that she only developed one breast.

We spoke about her experience with diagnosis and interacting with healthcare professionals; and how her belief that Poland Syndrome didn’t really affect women led her towards advocacy and connecting with a wider community of people like herself.

Rebecca is passionate about empowering and informing people living with Poland Syndrome so they feel able to make choices that are right for them. She wants to see a world where those with ‘deformities’ like her are represented and visible and she dedicates her time to advocating to make it happen.

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S2, E2. Poland Syndrome: Surgeons as supporters: ‘much more than just fixing a problem with a scalpel’

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S1, E8. Huntington’s disease: Family, uncertainty and living life to the full